Life saving for little Ishani, injection of Rs 22 crore made available through lottery!

Meerut: Little Ishani, who lives in Meerut, Uttar Pradesh, has been saved through a lottery. Isha, who suffers from ‘Spinal Muscular Atrophy’, has been named in the ‘Novartis’ lottery and an injection of Rs 22 crore has become available free of cost.

When she was only 14 months old, her parents noticed that her growth was not going well. Examination revealed that her muscles were weak. Also, Ishani was diagnosed with a rare genetic disease called ‘spinal muscular atrophy’. The disease is caused by a lack of nerve cells in the spinal cord.

An injection of 22 crores

It costs Rs 16 crore to buy an injection called ‘Jolgensma’ which is used to treat this disease. Also, the Government of India has to pay a tax of Rs 6 crore on this. Therefore, the cost of this injection in India is as high as 22 crores.

Zolgensma injection is used for children under two years of age. Ishani will turn two in August. If not treated in time, children will have difficulty speaking, walking, swallowing, and breathing.

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Crowdfunding help

Raising Rs 22 crore for a middle class family living in Meerut in Uttar Pradesh was simply impossible. So in February of the same year, Ishani’s family decided to start a campaign through crowdfunding.

According to Ishani’s father Abhishek Verma, only Rs 6 lakh was collected in the first three months. Meanwhile, Abhishek had to quit his job at a private company in Delhi. He had to make this decision to take care of his daughter and pay attention to her treatment.

Life saved by lottery

Ishani is undergoing treatment at AIIMS Hospital in Delhi. In the first week of June, Ishani’s family received good news from the AIIMS hospital … Doctors told her that the injection would be available free of cost and tears welled up in Ishani’s parents’ eyes.

Ishani’s name appeared in the Novartis lottery and she got the injection for free. 100 injections of Zolgensma from Novartis will be distributed free of cost. The children were selected by a lottery. Ishani is ‘lucky’ in this lottery.

Crowd funding will be donated

Ishani was injected on June 17. She will be kept in isolation for the next six months. Isha’s parents have said that all the money raised through crowdfunding will be donated to the families of children suffering from spinal muscular atrophy.

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